A daily rating overview
Keeping track while getting better with Thunder God Vine
I have kept the important moments of my treatment with Thunder God Vine medicinal extract by rating day by day how I felt on a scale from 1 to 10 when I started getting better. I also kept track of all my regular blood analysis.
Thunder God Vine medicinal extract = Thunder God Vine T2 extract = TGV T2
The experience of using Thunder God Vine medicinal extract is similar to that of many treatments : some time to kick in and needing adjustment.
My previous treatment is 20mg Methotrexate injections + 5mg Prednisolone for a year. I stopped all treatments during a period of 2 months before switching to this one, reason why the Prednisolone I take is high at the beginning. I haven’t changed anything else in my lifestyle. You can read more of my journey with RA since I declared on the About me page.
This of course is my very personal experience.
The 1 to 10 scale
- 10 Is how I used to feel before I declared Rheumatoid Arthritis on a good day.
- 9 I can have a normal very busy day. I have no joint affected. In the evening, I might feel tired if I did too much and have pain in some place.
- 8 I can have a reasonable busy day, I may have 1 or 2 mildly affected joints. I may use Naproxene 225mg to make it go away.
- 7 I can do a few errands but will rather stay home and try to rest. I may have 1 or 2 very painful joints and other mildly affected. I will use Naproxene 450mg to ease the pain.
- 6 I will stay at home and not do much, I will go out only if I have to and if my feet are OK. I have 3 or more very painful joints. I will use Naproxene 450mg to ease the pain and probably increase Prednisolone by 1mg if it doesn’t go away after one or 2 days.
- 5 Same as 6 but I will stay home and prefer to stay in bed, I need help from others for simple things.
- 4 I am in a lot of pain and will stay in bed.
- 3 I will stay in bed all day and be in extreme pain.
- 2 I will call an emergency doctor and go to hospital.
- 1 I don’t know what it’s like to be there.
Discussion of chart 1 : getting better after 4 weeks
My physician put me on a low dosing at 1mg/kg/day which is 70mg/day of TGV T2 starting 7th of September 2015.
At the end of week 4 which is not on the chart, I lowered the Prednisolone from 8,75 to 7,5mg/day. I was still in pain but experienced incredible days of complete relief at 9. And if you look at the yellow line, despite lowering Prednisolone 3 more times, I was steadily getting better.
When I tried to cut the Prednisolone at 2,5mg, my body reacted strongly against dropping from 8 to 5. My doctor told me to not withdraw so fast and that I could move up to 90mg/day, because I was feeling great and my blood analysis were good. So I went back to 3,75mg Prednisolone/day and 90mg TGV T2.
The next thing is not on the chart, I was feeling so good and relieved I found it not useful to continue rating myself. The pain was gone, no affected joints, at least when rating 9, which was the case most of the time.
Important to mention some of the symptoms were still there : a reduced ongoing morning stiffness and some fatigue.
Discussion of chart 2 : stabilizing after 4 months
Using Thunder God Vine helps me reach a low level of activity of the disease after 4 months.
This is week 16 so it’s already 4 months.
I’m taking 90mg/day of TGV T2 together with Prednisolone 3,75mg. I’m doing really good and I want to post it to my Facebook so I start rating myself again.
My daily rating is 8 or 9. I am now evaluating rates at 8,5 or 9,5 because the plain 8 or 9s do not reflect the subtle variations I experience when it comes to fatigue and morning stiffness.
I try to lower Prednisolone again. Two weeks later with 3 bad days rating 6 I decide it is not worth breaking the virtuous cycle I seemed to be in and go back on 3,75mg.
Discussion of chart 3 : remission after 6 months
Using Thunder God Vine puts me in a remission after 6 months.
This chart is the latest in October 2016. I’m not sure of the date I started the new dosing of 100mg/day (1,5mg/kg/day) TGV T2 after seeing my physician. By the way, 90mg/day is usually a maximum.
It reflects my experience since April 2016: remission rating at 9 or 9,5. By remission I mean I have (almost) no more symptoms, including no more fatigue and morning stiffness. You may also be interested to read my Thunder God Vine personal experience which compares the symptoms and the side effects of my current treatment VS previous treatment .
I have tried to lower Prednisolone again at 2,5mg/day as you can see. It’s ok but makes my rating drop to 8 sometimes. Going back to 3,75mg is much more comfortable.
I have tried to replace it with 500mg Naproxene per day which is a commonly prescribed NSAID in RA and it does the trick. The thing is my stomach doesn’t like it and I need to take antacids along with it, so I made my choice. I will keep trying to get off but am ready to take it for the rest of my life if I cannot find a safer replacement.
After more than two years
I am still in a remission today (January 2018) with 100mg/day of TGV medicinal extract. I know I still still have RA because at times I experience a soft joint here or there in the evening but my days are usually a 10. I also experienced the return of symptoms this summer when I stopped taking during 17 day to “give it a try”. It took about 10 days after that to return to normal.
I have lowered the Prednisolone from 3,75 to 2,5 mg/day which is very low. It has had no influence on my rating unlike before. I haven’t changed anything and am not taking anything else apart from TGV. This fact made me want to complete this post, as I have tried in the past to do so unsuccessfully. I will continue and try to cut these 2,5mg in two again soon and will let you know.
I work again since April 2016. I’m a commercial film producer. I have the same energy I used to with a few more years.
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